MyRettTeam

Great question! (And just a small note — it's spelled "Rett" syndrome, named after the doctor who first described it.) The signs can vary from person to person, but here are the most common ones to be aware of:

Early Signs (often noticed in infancy)
- Slowed growth, including head size
- Missing or losing developmental Show Full Answer

Great question! (And just a small note — it's spelled "Rett" syndrome, named after the doctor who first described it.) The signs can vary from person to person, but here are the most common ones to be aware of:

Early Signs (often noticed in infancy):
- Slowed growth, including head size
- Missing or losing developmental milestones like crawling or sitting
- Low muscle tone, making a baby feel "floppy"
- Reduced eye contact and social engagement
- Loss of purposeful hand use, like holding a bottle or picking up toys

As a Child Grows, Other Signs May Include:
- Repetitive hand movements like wringing, clapping, or tapping
- Difficulty speaking or loss of words already learned
- Breathing irregularities, such as breath-holding or rapid breathing
- Seizures
- Trouble with balance and walking
- Scoliosis (sideways curve of the spine)
- Sleep disturbances
- Digestive issues like constipation or reflux
- Swallowing difficulties
- Anxiety or panic episodes Rett syndrome also progresses through four stages, so symptoms can change over time. Some symptoms may stabilize or even improve in later stages.

It's always a good idea to work closely with a specialist who knows Rett syndrome well, as they can help monitor and manage these signs as they evolve.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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